We participate in the National Epilepsy Foundation’s centerpiece advocacy initiative Teens Speak Up! and the Public Policy Institute. Every year the National Epilepsy Foundation brings together over 150 advocates, including affiliate staff, parents, children, doctors and volunteers from across the nation. Through this initiative, we are able to strengthen our advocacy network, share updates on the state of epilepsy research & funding as well as give our families an opportunity to speak with Congress and share their stories of living with epilepsy.
Teens Speak Up! is a program that provides an opportunity for teens with epilepsy and their parents to visit the nation’s capital, receive advocacy training, meet with their legislators, and tell their personal stories. Teens Speak Up! is part of the Public Policy Institute. Teens from across the country are nominated by local affiliates and selected by the National Epilepsy Foundation to participate in the program. After receiving training at KSU, each teen is asked to turn that training into action by advocating for themselves on an ongoing basis. For information on how to become a teen advocate, please contact Director of Epilepsy Services Mary Wontrop at firstname.lastname@example.org.